For those who are interested, please contact me by email or leave a message and your contact details on the blog. I promise to get back to you as soon as possible. I will be helping to collate the orders before sending in to the society. Thank you for your support.
Haemophiliacs
Thursday, September 29, 2011
For those who are interested, please contact me by email or leave a message and your contact details on the blog. I promise to get back to you as soon as possible. I will be helping to collate the orders before sending in to the society. Thank you for your support.
Saturday, September 10, 2011
OUR APPEAL | |
Dear friends, First, let me thank you for taking some time off to read this letter. I hope you will be able to understand haemophilia better when you have finished reading this. Haemophilia is a rare inherited disorder that affects only the male. It is passed down from mother to son. The affected person suffers from deficiency of a clotting factor. This results in the inability of the blood to form clots normally for bleeding to stop. So he gets bruises easily. In addition, bleeding also frequently occurs in the muscles and joints with or without injury. When bleeding occurs in the vital organs like the head, neck or abdomen, it can be fatal. No cure is available for haemophilia unfortunately, even though there is a lot of research going on of genetic engineering and gene therapy. However, there is some form of treatment available to stop or prevent bleeding. It is to replace the missing factor in the blood. This treatment is frequently needed and it is a life long requirement. Expensive indeed is the treatment and most patients cannot afford it. The various hospitals have offered some subsidy (between 50% to 65%). Nevertheless, the cost is still very high for most patients. The Haemophilia Society of Singapore has taken up the task of helping the members in the form of an additional subsidy. We have set up Endowment Funds at NUH, SGH and KK Hospital over the last 10 years for this purpose. In order to have sufficient money in these Funds, we have to rely on generous and kind donations from public well-wishers. We are very thankful to the many who have helped us in the past in one way or other. We hope you can also join in and contribute generously towards this worthy cause. A haemophiliac can and should lead a normal life if he receives adequate and proper treatment. He does not have to miss school or work. He does not have to suffer pain. He does not have to become a cripple. He can contribute to society like any other person. He can enjoy life like others. But he needs your help. A little help can make a lot of difference. With subsidy from the hospitals and the Haemophilia Society of Singapore, a haemophiliac still has to spend about $300 to $500 a month for his treatments. This can be a tremendous burden on the family. We have also set up a welfare fund to help families in financial difficulties. Your contribution and donation can mean a lot to them. If you want to make a donation, please make your cheque payable to THE HAEMOPHILIA SOCIETY OF SINGAPORE. Please supply your NRIC number so that we could issue you a tax-exempt receipt. Such donation will be automatically deducted in your tax return by the Tax Authority of Singapore for tax computation purpose. We will issue you a tax-exempt receipt. Besides financial support, there are other forms of support you may avail to us. Feel free to talk to us at FARRER ROAD POST OFFICE, P.O. BOX 273, SINGAPORE 915810 TEL: 62358166 (DR TAN HOOI HWA) TEL/FAX: 64490289 (DR GAN KIM LOON) Thank you! Yours sincerely, DR GAN KIM LOON PRESIDENT |
Friday, October 17, 2008
Is this a scam?
For the rest, thanks for the support. Again, donation is strictly optional. Just pass down what you have learnt, hopefully, make us the haemophiliacs known=)
Any personal comments can be sent to the following email:
yangping90@hotmail.com
rest assured that this account is used and all mails will be responded within 24 hours. U can even add me and talk to me online. Hopefully it's sincere enough to change ur opinion if u think this is a scam.
that's all folks! take care=)
Wednesday, September 3, 2008
Saturday, August 30, 2008
113 Yunnan Drive 3 Singapore 637977
Of cos this will be for those who know and trust me, knowing that i wun become a Ren Ci monk or some NKF guy..
Somethings that i will be looking into will be the setting up of a paypal account, as well as fund raising campaigns. Till then please check out this site regularly. It maybe possible for registration of volunteers as well in case needed for fund raising campaigns. Thank you everybody. Ur support is my source of energy to keep burning. The number on the counter represents the level of motivation in me.
On a side note, I would like to wish all teachers (some might be reading this) a HAPPY TEACHERS' DAY!
Take care guys~
Tuesday, August 26, 2008
There is no cure for hemophilia yet but gene therapy remains an exciting possibility and holds out the prospect of a partial or complete cure for hemophilia. There are many technical obstacles to overcome, but it is encouraging to see the research efforts currently underway.
The life expectancy of someone with hemophilia varies depending on whether they receive proper treatment. Without adequate treatment, many people with hemophilia die before they reach adulthood. However, with proper treatment, life expectancy for people with hemophilia is about 10 years less than that of males without hemophilia, and children can look forward to a normal life expectancy.
While cure is on the way, help keep us alive...
Please donate generously, thank you=)
Monday, August 25, 2008
Most haemophiliacs in Singapore carry out home treatment known as "self infusion". This is when haemophiliacs are able to purchase and store the drugs at home and use them when necessary.
We are vulnerable. If we aren't careful enough, an air bubble is enough to kill us, if it enters our blood stream...
Do your part, donate now.
It doesn't matter how much you donate. Every cent is precious to us.
Thank you.