Friday, October 17, 2008

Is this a scam?

Well joker, i'm not surprised if u see this as a scam. If u received the mail that i sent out, i already have quite a number of people replying to the mail that it was a scam. Some said they filed a police report on that mail and the blog. Well, the blog is still here and the mail is still being forwarded.

For the rest, thanks for the support. Again, donation is strictly optional. Just pass down what you have learnt, hopefully, make us the haemophiliacs known=)

Any personal comments can be sent to the following email:
yangping90@hotmail.com

rest assured that this account is used and all mails will be responded within 24 hours. U can even add me and talk to me online. Hopefully it's sincere enough to change ur opinion if u think this is a scam.

that's all folks! take care=)

Wednesday, September 3, 2008

Though im not seeing anyone tagging on the board, i see the numbers jumping on the counter, which is a great thing!

Remember that the least that you can do, is spread the message. Let us be known. Thank you all for the support. Will be adjusting the donation button. Please be patient.

Thank you..

Saturday, August 30, 2008

Hey guys, ive received several emails regarding wad are some of the ways u guys can donate. So I've tot about it and here's the deal. For those s$20 or less, you guys may want to send the cash over to me via mail. My address would be:
113 Yunnan Drive 3 Singapore 637977
Of cos this will be for those who know and trust me, knowing that i wun become a Ren Ci monk or some NKF guy..

Somethings that i will be looking into will be the setting up of a paypal account, as well as fund raising campaigns. Till then please check out this site regularly. It maybe possible for registration of volunteers as well in case needed for fund raising campaigns. Thank you everybody. Ur support is my source of energy to keep burning. The number on the counter represents the level of motivation in me.

On a side note, I would like to wish all teachers (some might be reading this) a HAPPY TEACHERS' DAY!

Take care guys~

Tuesday, August 26, 2008

A person born with hemophilia will have it for life. The level of factor VIII or IX in his blood usually stays the same throughout his life.

There is no cure for hemophilia yet but gene therapy remains an exciting possibility and holds out the prospect of a partial or complete cure for hemophilia. There are many technical obstacles to overcome, but it is encouraging to see the research efforts currently underway.

The life expectancy of someone with hemophilia varies depending on whether they receive proper treatment. Without adequate treatment, many people with hemophilia die before they reach adulthood. However, with proper treatment, life expectancy for people with hemophilia is about 10 years less than that of males without hemophilia, and children can look forward to a normal life expectancy.

While cure is on the way, help keep us alive...
Please donate generously, thank you=)

Monday, August 25, 2008

Do you know:

Most haemophiliacs in Singapore carry out home treatment known as "self infusion". This is when haemophiliacs are able to purchase and store the drugs at home and use them when necessary.

We are vulnerable. If we aren't careful enough, an air bubble is enough to kill us, if it enters our blood stream...

Do your part, donate now.

It doesn't matter how much you donate. Every cent is precious to us.
Thank you.

Sunday, August 24, 2008

This site is specially made for haemophiliacs of Singapore, to discuss anything regarding this condition, as well as to help create an awareness of the presence of such a condition. Feel free to comment.=)
Haemophilia is a genetically inherited bleeding disorder where there is a deficiency of a clotting factor in the blood. This results in a form of bleeding tendency. Thus, the haemophilia patient often suffers from easy bruising and bleeding into muscles and joints. Because of the genetic pattern of inheritance, the disorder generally affects males only. Females with the haemophilia genes are known as carriers.

I am one of the many haemophilia patients in Singapore and I am here trying to reach out to all of you to help us out in one way or another. With the advance medical technology these days, there's still NO CURE to haemophilia. We, the patients, rely on the injection of Factor 8 or Factor 9 into our body in order to live life like any normal human beings.(Details of the conditions can be read from www.haemophilia.org.sg)

Here's the cost of medication(for me):

5 Units of factor 8 per injection: S$22.74 X 5= S$113.70
3 injections per week: S$113.70 X 3= S$341.10
4 weeks per month: S$341.10 X 4= S$1364.4

Note: cost of each unit of the factor 8 has been heavily subsidized by hospital grant as well as Haemophilia Society's subsidy. Actual cost per unit is $122 for factor 8 and $242 for factor 9.


The point is, after the incident of NKF as well as the Ren Ci monk (Damn these pple), the haemophilia society of Singapore lost her greatest donor. Donations is very low and the society is basically falling on the balance that we have to help subsidize the patients costs. If this situation carries on, the society will soon be unable to subsidize the patients. In other words, it will become and other burden for the patients.

You can help, by just forwarding this message to whoever is unaware of the existent of this group. Yes, we are small, and thus we are vulnerable. Please help in whatever way you can. Some examples:

Corporate leaders: Donate money to help us through this difficult time.

Students: Spread this message around. Especially to those student leaders who are in search of beneficiaries for any charitable event, add "The Haemophilia Society of Singapore" into your list of beneficiaries!

To anyone else: simply forward this message to as many people as possible in your address book!

Please direct all donations to the following:

The Haemophilia Society of Singapore
Farrer Road P.O. Box 0273 Singapore 912810
www.haemophilia.org.sg
Or email to secretary@haemophilia.org.sg



The financial records of the society can be obtain from the webpage mentioned above. Don't worry, your donations will definitely be put to good use.

IF U ARE STILL NOT CONVINCED ENUF TO DONATE , Please READ ON...

My Story:

I am a student, currently studying in Jurong Junior College. I am a haemophiliac (a term for haemophilia patient).

I don't remember when i started to know about this disorder in me. My mum takes extra care for me, and my father works extra hard to support the family. And my role, is to use up half of the family income each month. Let's drop the issue about money.

Being a male, I am a very active person. I play all kind of sports that i come in contact with, only to get scoldings by my mum. "Others can play, but u cant, you are different." That's what my mum told me. "you are unique" might be something that one might one to hear, but all i heard is " you are different". That makes me sound like a freak.

But my doctors encouraged me to take on sports as long as i know how to take care of myself. All my classmates and teachers know about my disorder and took special care of me. I shud've been glad about it, but i felt so different.Why cant i be like others?

Until one day, wen i turned up for the Annual General Meeting for the Society, I spoke to this mother of a haemophiliac. She told me "My son dare not do anything, PE , camps in schools, outing, he skipped them all. All he does is staying at home and play computer."

This is a very common thing that happens to haemophiliacs, they close themselves in. We can lead normal lives if we receive prompt and adequate treatment. We could be like any other person out there, do the things that we want to do, if we are able to support ourselves for the treatment.

A summary of the story:
a.) Haemophiliacs close themselves in due to factors such as cost of treatment, views from society etc.
b.) Not able to pick up life skills like any normal person. Miss out things in life.


Not only everyone has the right to live, everyone has the right to live life to the fullest.
Surviving for survival is plain emptiness without a dream, let us have dream..
WE are a minority, but we have our rights to live and dream as well...
Grant us the chance, by donating now. Thank you...

With regards,

Wong Yang Ping (18 years old)
yangping90@hotmail.com